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The demand for testing was lower than expected and may have reached its peak in 1990.The excess of low risk results was not fully explained by the age effect.All the genetics centres concerned have agreed a common service protocol which requires extensive pre-test counseling and post-test follow up.The worth of the procedure remains to be decided.The availability of a large body of pooled data from all the United Kingdom testing centres, which individually are likely to have only a few results,will form a valuable resource for monitoring the long term psychosocial impact of testing. |
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